Webinars

Description:

This session focuses on health literacy and misinformation in the context of providing gender-affirming care for youth. Topics include identifying misinformation messages, understanding how these messages are created and transmitted, evaluating the trustworthiness of health information messages, and addressing health misinformation in practice.

Speakers:

Rodrigo Sierra Rosales, MSc, MD

Rodrigo (they/he) is a PhD student at the School of Population and Public Health at The University of British Columbia. As a child and adolescent psychiatrist in Chile, Rodrigo volunteered and later became the clinical supervisor for Chile’s It Gets Better Project crisis helpline. They also co-led the development of Chile’s first community health centre focused on women and LGBTQ+ people. They moved from Chile in 2021 to complete their MSc in Population and Public Health at UBC, with their thesis examining health equity indicators of a digital sexual health program in BC. Their doctoral research focuses on gender-affirming care provision to youth in Canada.

Drew B. A. Clark, PhD, HEC-C, RCC

Dr. Drew B. A. Clark is an Assistant Professor in the School of Nursing at The University of British Columbia, where they lead the Healthcare Ethics & Equity Team. They are a Certified Healthcare Ethics Consultant (HEC-C) and Registered Clinical Counsellor (RCC) whose clinical work has primarily been in mental health, substance use, palliative, pediatric, and gender-affirming care. Dr. Clark’s research focuses on healthcare ethics and health equity. Through qualitative, participatory, and empirical ethics research, as well as arts-based knowledge translation, they contribute to the scholarly literature and health professions education in areas such as ethical decision-making, youth capacity to consent to healthcare, and healthcare access for Two-Spirit, transgender, and non-binary people.

Description:

Communication matters - to patients, families, clinicians and leaders. This is true in all care settings. We often hear about challenges with communication, but what about when things go right? Canuck Place Children's Hospice, as a specialist pediatric palliative care program, has developed practices, innovations and tools to enhance our skills and approach when working with children with serious illness and their families. Join us to learn from our insights to enhance your own practice and experience.

Speakers:

Kristina Boyer
Executive Director, Clinical Operations and Quality
Canuck Place Children’s Hospice

Kristina is a registered nurse and healthcare leader with a deep commitment to pediatric palliative care and over two decades of experience supporting children with serious illnesses and their families. Since joining Canuck Place Children’s Hospice in 2005, Kristina has had the privilege of working alongside a compassionate and skilled team to reduce suffering and improve quality of life for vulnerable children. Kristina is passionate about advancing pediatric palliative care through leadership, innovation, and system-level thinking—and is proud to be part of a community that puts compassion, dignity, and family at the centre of care.

Dana Warburton

Family Engagement Advisor
Canuck Place Children’s Hospice 

Dana works as Patient and Family Engagement Advisor for Canuck Place Children's Hospice. She is a parent herself of a medically complex child and brings the lived experience lens to her work. She supports patients and  families by collecting feedback, as well as providing advocacy and support navigating the healthcare system. She supports staff teams in engaging families in a trauma informed way in multiple domains. She has worked extensively in both the mental health and medical systems and sits on several advocacy and advisory committees championing the role of lived experience informing care.

Description:

In this webinar, we will discuss our scoping review that aimed to generate learnings to inform the delivery of synchronous virtual care/telehealth in pediatrics. Our review assessed a decade of published literature (2013-2023) to extract key learnings from 117 articles. We focused our review on the perspectives of pediatric patients and their family caregivers who participated in virtual care/telehealth delivery. In our webinar, we will summarize results, priorities and considerations for accessible and inclusive synchronous virtual care/telehealth approaches. Akey focus will be to highlight evaluative approaches, promising strategies including frameworks(e.g., social determinants of health) and infrastructural considerations (e.g., technical, logistical and training) to deliver equitable virtual care.

Speakers:

Rosslynn Zulla
Assistant Professor
University of Calgary

Dr. Rosslynn (Roz) Zulla is an Assistant Professor at the University of Calgary, Faculty of Social Work. She has over 10 years of experience working with neurodivergent children, immigrant,refugee families, and LGBTQ2S+ communities. Her research tackles the intersectional barriers these groups face through participatory, community-based methods. Her research program spans child/youth mental health/disability, community development, and well-being. Her work ultimately seeks to improve the quality of life for children with health/mental health/neurodevelopmental conditions and their families.

Vina Mohabir

SickKids: The Hospital for Sick Children

Vina Mohabir (she/her) has lived with chronic pain since she was a teenager. She is a PhD student in Health Systems Research (Health Informatics Emphasis) at the University of Toronto’s Institute for Health Policy, Management, and Evaluation and a trainee in the iOUCH Pain Research Lab at The Hospital for Sick Children. Under the supervision of Dr. Jennifer Stinson and Dr. Chitra Lalloo, her research focuses on the co-design and implementation of a digital stigma-reduction intervention for youth with sickle cell disease using participatory and user-centered design methods. She actively facilitates patient engagement in health research and digital health innovation across Canada and internationally. She integrates Justice, Equity, Decolonization, Indigenization, Inclusion, and Accessibility (JEDIIA) principles into her work to ensure that interventions are meaningfully developed with and for equity-deserving communities. As a cancer survivor and chronic pain advocate, Vina is deeply committed to centering Disabled, diverse, and low-income youth in research, policy, education, and clinical practice.

Eyal Cohen
Program Head, Child Health Evaluative Services; Professor,Department of Pediatrics; Professor and Full Graduate FacultyMember, Institute of Health Policy, Management & Evaluation; Co-Executive Director, Edwin S.H. Leong Centre for Healthy Children
SickKids: The Hospital for Sick Children

Dr. Eyal Cohen received academic training at the University of Toronto (medicine) and McMaster University (health research methodology), and clinical training at The Hospital for Sick Children(SickKids) and the Children’s Hospital at Westmead in Sydney, Australia. Dr. Cohen co-founded the Complex Care Program with his colleagues in the Division of Paediatric Medicine at SickKids. He is currently the Program Head of Child Health Evaluative Sciences at SickKids Research Institute and Co-Executive Director of the Edwin S.H. Leong Centre for Healthy Children.

Dr. Cohen is a Professor of Paediatrics and Health Policy, Management and Evaluation at the University of Toronto. He is also a Scientist with the CanChild Centre for Childhood Disability Research at McMaster University and an adjunct scientist at ICES. Dr. Cohen serves in a number of advisory roles for the Provincial Council of Maternal and Child Health, BORN Ontario, and the Ontario Public Drug Program.